Migraine

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How are your migraines affecting your work and how do you feel about that? (lemm.ee)

submitted 2 days ago by meneervana@lemm.ee to c/migraine@lemmy.world

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As the title says. For me it's always the same: at first, my boss is understanding, but when I miss work because of a migraine for the 15th time, that compassion kind of dulls away... At some point, they start complaining that I am unreliable and they always seem to be waiting for when I get better, as if there is a cure for this chronic condition.

I always feel like somehow it is my fault for being sick and I feel like I let my team down even though I know it's the last thing I want.

How do you guys cope with it? What do you tell your boss? How do coworkers view you? Any tips and tricks are always welcome!

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[–] n3m37h@sh.itjust.works 2 points 2 days ago (1 children)

I've had good experience using psilocybin mushrooms. Do what you want with this information Here is a journal from

University of Toronto

The authors’ research group recently reported on the preventive or transitional effects of a pulse regimen of low-dose psilocybin (10 mg/70 kg) for cluster headache in a randomized, double-blind, placebo-controlled trial.31 The dose (mildly psychedelic) and regimen (3 doses, each 5 days apart) were based on those used by patients.5 In the study, psilocybin reduced cluster attacks per week by approximately 30% over three weeks, although this reduction did not reach statistical significance against placebo (p = 0.251; n = 14).31 A Danish group also reported on the effects of the same pulse regimen for cluster headache and included measures of brain functional MRI.32 In this open-label investigation, there was an approximately 30% reduction in attack frequency in the four weeks after pulse completion (p = 0.003; n = 10), which correlated with hypothalamic functional connectivity changes after psilocybin.32 The hypothalamus is a key brain region in the pathophysiology of cluster headache

[–] meneervana@lemm.ee 1 points 2 days ago (1 children)

That sounds very interesting! I am already on a new med so I might have to wait to try something like that (I am on a CGRP targetting med now) but it sounds promising. What was your experience with it?

[–] n3m37h@sh.itjust.works 2 points 1 day ago

I get really high for a night and next 6-12 months 0 headaches. I take em when I really need em. Same goes for depression, feel fantastic for a couple weeks after

[–] noseatbelt@lemmy.ca 1 points 2 days ago (1 children)

If it's really debilitating then I take a sick day. This is done through an app so I don't need to justify it. The only time I tell my boss is if it hits in the middle of the day and I need to stop working, which usually doesn't happen as I can usually tell when I wake up whether it's that bad or not.

I'm fortunate enough to work from home so it's nice that I can do whatever I need to get me through the day, like if I get nauseous I can puke freely and carry on without worrying about anyone hearing or walking through the office looking like garbage.

Mine are not that frequent though, at worst it's like once a month. I have a friend who has it really bad, she's been off work for ages because anything can set it off but she has no idea what, or how to get relief.

[–] meneervana@lemm.ee 1 points 2 days ago (1 children)

That's really fortunate! I'm so sorry for your friend, that sucks. I'm right in between; my migraines come often (about twice a week for a few weeks and then sometimes a few weeks with no migraines at all) and the pattern is kind of unpredictable. I do not work from home so if I am sick they have to know. Sometimes it feels like they don't really believe me or like they think I am overplaying it which I am not. But then sometimes when I haven't had a migraine for a few weeks Im like... "I'm cured! They're gone! I made this all up!" And then one day I get smacked with a migraine again....

[–] noseatbelt@lemmy.ca 1 points 1 day ago (1 children)

Have you been to see a specialist about it? My friend did, and made some changes to her lifestyle which helped a bit but they're not gone, just better managed.

[–] meneervana@lemm.ee 1 points 1 day ago (1 children)

Yes, I am being treated by a neurologist. I have tried a lot of meds and sadly none really seemed to help long term.

[–] noseatbelt@lemmy.ca 1 points 20 hours ago

I'm sorry to hear that. The changes my friend made are not med related, more on the side of diet and exercise, limiting stress responses, that sort of thing. Like I said, they're not gone so I'm not saying it's a cure, just that my friend feels she has a better handle on it.