rowinofwin

joined 1 year ago
[–] rowinofwin@beehaw.org 4 points 1 year ago

There are so many things to say here but ultimately the whole Centrelink system is not built to provide payments, it is built to deny them, so it is definitely going to be hard. That said, once you are approved it is fairly stable and my partner who has been on it for about 8 years has never had a blip or glitch or even hint of a problem. I was also able to eventually get Carer payment and provide care full time, though now with the progress we have made I am working part time and moving towards full time.

Depending on what you are diagnosed with the oath can be really variable. If it is something like bipolar (rapid cycling especially) there is no reasonable way you can maintain employment without significant support and accomodations.

That said, a reasonable doctor should be able to see the impact in your life and should be willing to handle the form, regardless of your age. Saying because you are young you are not disabled is just pure nonsense and would definitely be a good reason to move on and if possible make a complaint. It is literally discrimination to deny someone services based on age and this person is aware of that. Saying that you don't need DSP because you are in your 30s is like saying you don't need insulin in your 30s, maybe statistically it is less common but medical decisions are driven by statistics and implemented on an individual basis.

Anyway, switching psychiatrist is probably the best move if you think they are unlikely to change their mind. Trying one more time to get them to process the paperwork may be worthwhile depending on your circumstances.

If you do try I would recommend making a list you take with you of the areas of your life that are impacted. Can you perform your activities of daily living? Do you currently receive support from other people? How many jobs have you had and for how long over the last 10 years? How many units have you failed? Have you had a large variance in grades between units because of this issue? What about relationships? What about non work non education things like friends and hobbies? What about physical health, including diet, exercise, and drug use?

Lastly, I would consider being cautious about which drugs you are recommended. My partner developed mild twitching as a result of one medication and now 3 years later the symptoms are starting to lessen, but some of the meds can have big side effects and may also not do all that much to help. An incorrect diagnosis can lead to significant harm, so making sure you are personally well informed about what is happening, what you have been diagosed with, and what medications you are on will help protect you from harm. Also consider that non medical interventions can be a good adjunct to medical interventions, so managing your diet, getting good social connection time, exercising, and engaging with things you enjoy can make a significant difference.

My partner was diagnosed with extremely rapid cycling bipolar 1 and was on lots of meds for it, after a lot of work we have figured out that they are actually autistic and have ADHD along with a buttload of childhood trauma resulting in CPTSD. Work on the CPTSD has made a massive difference to life and making appropriate accomodations for the autism and ADHD have led to tonnes of other improvements. Medical support for ADHD is not practical where we are living but in another year we will be moving to somewhere that has actual support for that and meds look likely, specifically a stimulant, but apart from that the entire current treatment plan for the last 3 years has been diet (strict keto moving towards carnivore), reduction and eventual removal of almost all dairy (caesin specifically), and a buttload of trauma work as the interventions and then supportive modification of the environment including changing lighting, removing loud electronics (some wall chargers scream all day), managing clothing, and removing sensory stimulation that is unpleasant like terracotta and smelly deodorant. All of these things have done more than the meds ever did, but those meds were for the wrong issue and so may be perfectly good for other issues without being right for my partner, no shade on meds.

Good luck, and DM if you have questions

[–] rowinofwin@beehaw.org 2 points 1 year ago

Yeah, I like DITMM but my partner and I keep an eye on each other, so if I take my meds and mark it off in Telegram they can see it immediately and that log is permenant, rather than being stuck on one device and only for me. Still, handy if you don't have a helping hand like I do.

[–] rowinofwin@beehaw.org 2 points 1 year ago

I have a large cardboard box with arduinos, raspberry pis, and various other electronics. Will they ever get used? If they stay in the box definitely no, but I don't have a good system for getting them out while not having them just become clutter. That said, Ritalin helps a lot, so maybe with a good sleep and some good meds on board I have a chance.

[–] rowinofwin@beehaw.org 4 points 1 year ago

I can genuinely point to Jupiter, any time, day or night. I may need to get my bearings for NSEW but assuming I have any point of reference I can just point at Jupiter. It is my favourite planet and since I was a kid I was a little obsessed and figured it out, now it just runs in the background like a little JPS (Jupiter Positioning System) all the time.

[–] rowinofwin@beehaw.org 3 points 1 year ago

A truck driver in Australia has to have a higher grade license than a car license. In IT I had a bunch of certifications and so on but that never changed my earning potential much. I think the lack of a university degree was the big thing, but in truck driving that won't be an issue.

[–] rowinofwin@beehaw.org 2 points 1 year ago

I'm 17 years without alcohol, 16 without "le drugs", and 15 without smoking. I still have issues in my life and challenges to solve but wow, all of those would be harder and more numerous if I still behaved like I used to. I had a fairly short period of massive excess and had a few lucky moments of clarity which resulted in me quitting it all one after another. My partner and I have been together since just after I quit drinking and I am really glad they never had to see me being my worst self.

My biggest takeaway is it really does get easier with time. The hardest times were within a short time of quitting. The longer I sustained the more ingrained the change became and now I would be stubborn and resist any sort of backslide.

 

Hi all,

I have fairly severe ADHD and I take Concerta (27+18mg) and Ritalin (20mg) daily. I have a bunch of tools I have found helpful for managing my life including the ADHD symptoms and thought I would share some here.

Telegram - I use Telegram as my phone brain, a place I put information so it is out of my brain. I put in meds (I copy and paste almost every time) and because I do it so regularly it is actually part of taking meds now. I therefore know when I took my meds last to within a couple of minutes and can use that to make sure I don't miss or double up. I also use scheduled messages up to months in advance for things like car registration, booking my psychiatrist appointment, or knowing when to take my cat to the vet.

Alarms - I use a few alarms which are countdowns from when I did something regular. For example, I take my Concerta in the morning, set a 6.5hour timer, then I am reminded to take my Ritalin. I do the same for pain meds or other meds as needed. This means I have a countdown in my tray the whole time which helps to keep it in mind.

Banking - I switched to a digital only bank and was able to finally automate almost all of my major transactions. My pay comes in, rent goes out, money gets sent to various other accounts like savers for specific goals or transactions accounts. By making my fuel always come from the same place every time and making sure my fuel budget always transfers through to there I never have to worry, I just know that I have fuel money there.

Physicality - I need to be physically active. I was working in IT for a decade and it was not so slowly killing me. I now earn basically the same driving a truck and lifting heavy things all day. I am less stressed and I have a clear career ahead of me as I upgrade my licences and competencies. I am happier with more physical activity but trying to fit it in on the weekend or evenings was just a losing proposition for me, I work now for money and health and it is way better.

Anyway, that's a few thoughts, I hope someone finds them useful.

[–] rowinofwin@beehaw.org 5 points 1 year ago (1 children)

The a fanfic author drops a new chapter my partner is at least as excited as I am when a new video game drops. There is nothing cringe about fanfiction, it is creative writing just as valid as writing a new piece from scratch, just with more context built right in. If you like fanfic then maybe writing it is a good idea for you

That said, when it comes to writing, reading is the key. Read lots and lots and lots, then write whatever takes your fancy, but never stop intaking new works. All writing is some sort of remixing and that is OK, you just want to have a lot to draw from and then write a lot of bad stuff to learn how to write well.

[–] rowinofwin@beehaw.org 4 points 1 year ago (1 children)

Oh of course, I just find that having some weird needs gas made me seek weird solutions and I like to share them around. I definitely didn't get anything malicious from your post? Not sure if my tone came across poorly, I was going for a cheerful and helpful response, not any sort of critical or nasty, sorry if I sounded harsh or anything like that, definitely not my intention.

[–] rowinofwin@beehaw.org 7 points 1 year ago (3 children)

A simple but honestly kinda brute force way around it is to replace the TTF or equivalent font file for their font with a copy of Comic Sans on your system. It will show as Comic Sans on your system but will actually be Arial or Times New Roman or whatever in the document, so it will be what they expect on the other end.

That said, it is a simple accomidation, it should be manageable for them.

[–] rowinofwin@beehaw.org 6 points 1 year ago

Seconded, a positive mindset is what we are cultivating and that starts at the name. It is also clearer, we all know that reform is possible but some people interperet antiwork as full work abolishment, something way down the line of work reform.

[–] rowinofwin@beehaw.org 4 points 1 year ago (1 children)

Nebula has been quite successful as far as I can tell. A whole bunch of educational YouTubers have moved over or were part of establishing it and honestly it works well. Videos can download to your device, the quality is the same, the app is a tiny bit janky but nowhere near as bad as all the ads etc on the YouTube app, and the cost is actually reasonable and goes in a reasonable share to the creators. I strongly prefer direct access to creators like this and also like on Patreon. Direct support means there is no advertiser in between to demonetise a video or have it taken down because it is controversial. You can't even have a WW2 documentary on YouTube but you can have actual Nazis, but on Nebula you get analysis and history without Nike or Surfshark being reticent to sponsor a video.

[–] rowinofwin@beehaw.org 5 points 1 year ago

Lol, absolutely! Bigots gonna bigot, best we can do is not fall for it and be kind to each other.

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