@BarqsHasBite@lemmy.world's idea to share treatments that seemed to have worked for us is a good idea.
So – here is my recipe:
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Acceptance of CFS and commitment to my new live.
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feeding my mitochondria dayly with Ribose (~ 2 x 5g), Carnitine (2 x 1 g), Magnesium (400 mg), Ubichinole (200 mg) and some B-Vitamine. I'm taking a combination substitute and forgot which one is important for mitochondrial function.
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supporting my hormones by taking L-Thyroxin 50 μg and Prednisolon 1.25 mg. Probably a pinch of Testosterone would be helpful, too.
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Fighting POTS with 2.4 mg Bisoprolol and compression stockings, if it's bad.
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Intensive aerobic training (aka pacing). At my lowest point, I bought a heart rate sensor to start aerobic training as outlined in the r/cfs wiki. I found out that walking in my appartement already triggered heart rates indicative of anaerobic metabolism. I had to slow down quite a bit for my body to become able to start regenerating.
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Using a script/app to log my activities and remind me of taking breaks.
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Qi Gong, tuned down to current state. The avarage Youtube video is too much for severe to medium CFS – I reduce repetitions and simplify the forms when I'm down.
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Yin Yoga (or probably any other form of passive stretching. During Reha they prefered Fascia Training, which is good technique but imho too strenuous for medium to severe CFS).
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75 μg Clonidine and 1.75 mg Zopiclone when I'm not able to sleep.
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300 – 2 x 600 mg NAC when I'm wired but tired – haven't found my dose yet.
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For me, Binaural Beats work very well for this wired but tired state as well. I just feel uncomfortable using ear plugs and my tinnitus gets louder as well.
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All sorts of guided relaxation. Youtube is a treasure trove. When I'm down, I can't guide myself to deep relaxation.
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5–10 mg Prednisolone and 75 μg L-Thyroxine instead of 50 μg when I'm aware of an imminent crash for 3 days.
After 9 month, I was able to start 2 h/4 days work again, and after 8 more months (and several crashes) I was back to full time and ~ 60 % work load. After 3 month full time/60 % work load I know that I will not be able to work with a full work load any time soon (nor presumably ever again).