this post was submitted on 06 Dec 2023
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Thomas 🔭✨ (@thomasfuchs@hachyderm.io) 23andMe just sent out an email trying to trick customers into accepting a TOS change that will prevent you from suing them after they literally lost your genome (hachyderm.io)
submitted 11 months ago by PoseidonsWake@lemmy.world to c/technology@lemmy.world
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23andMe just sent out an email trying to trick customers into accepting a TOS change that will prevent you from suing them after they literally lost your genome ro thieves.

Do what it says in the email and email arbitrationoptout@23andme.com that you do not agree with the new terms of service and opt out of arbitration.

If you have an account with them, do this right now.

Here’s an email template for what to write: https://www.patreon.com/posts/94164861

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[–] jordanlund@lemmy.world 7 points 11 months ago (1 children)

I personally don't understand why people use these services in the first place.

In my case, I went through 23 and Me because 75% of my DNA comes from sources unknown. No idea who my father was or my maternal grandfather. So being able to fill in those gaps as well as helping to determine medical risk has been very useful.

[–] givesomefucks@lemmy.world 3 points 11 months ago* (last edited 11 months ago)

helping to determine medical risk has been very useful.

Thank to the American healthcare system's lobbyists, if a company sequences your DNA, they can't give you information related to health.

Which is why 23andme has a fraction of the stuff they used to.

I paid $5 to a third party to take my raw 23andme data and output a very nice html file (not online, in a zip file) that checks against common mutations for all types of shit. Not sure if they're still around, but they automatically delete your data once the HTML is sent out, if I want it again I don't have to pay again, but I do have to send them the raw data because they don't have it anymore.

Because they didn't sequence it, they can give me all the information without having to be a "healthcare provider" like 23andme would need to be to tell me the same info