this post was submitted on 23 Nov 2023
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Can you get a patient advocate in hospital? I know some states have rules about patients asking for help after being refused.
I’m sorry you’re going through this, I spent years getting diagnosed with gastroparesis after many dismissals from specialists who didn’t even do the basic test. Was also told it’s stress, anxiety, psychological etc.
Anyway peg/j tubes are fairly standard things if one can’t eat /digest properly, what is their pushback reason on those?
Chronic pain is a hard problem to solve, pain specialists are super expensive and just seemed to push infusions or other medications rather than trying to work out the source. I had no success with them tbh. Have you read “explain pain”? (Apologies if you’re already aware of this and it’s not helpful).
I haven’t read it, thanks for the suggestion.
The specialist tells me that they don’t do it because of risks. My main disability also means poor wound healing that could lead to complications, and I’m being told that it could end up being permanent.
Having read up on it I agree but I am getting desperate.