this post was submitted on 07 Dec 2024
377 points (97.0% liked)

Chronic Illness

272 readers
4 users here now

A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

founded 5 months ago
MODERATORS
 
you are viewing a single comment's thread
view the rest of the comments
[–] cAUzapNEAGLb@lemmy.world 7 points 1 week ago (1 children)

Could've just said effort or energy and i would've understood the intent of this post, I am now clued into spoon theory now though

[–] princessnorah@lemmy.blahaj.zone 6 points 1 week ago (1 children)

Neither of those terms are quite interchangeable though. Everybody has low energy days, that's relatively normal. But the word spoons is a shorthand for explaining a precious, and much more finite resource, as a way to distinguish the experience for disabled people.

[–] slackassassin@sh.itjust.works 0 points 1 week ago (1 children)

But it's not a vital nor precious resource. It's just tangable and limited. I think that's the disconnect.

[–] princessnorah@lemmy.blahaj.zone 3 points 1 week ago (1 children)

But it's not a vital nor precious resource.

I'm sorry, are you trying to argue that spoons aren't a vital, nor precious, resource for disabled people? Because I disagree vehemently. Please go and read Christine Miserandino's original post:

https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/

[–] slackassassin@sh.itjust.works 1 points 1 week ago (1 children)

I did, and the point was about general translation.

[–] princessnorah@lemmy.blahaj.zone 1 points 1 week ago* (last edited 1 week ago) (1 children)

You know what, nevermind, I'm done wasting my spoons arguing this point with people in this thread.

[–] slackassassin@sh.itjust.works 1 points 1 week ago (1 children)

Surely the most mature way to take any constructive criticism.

[–] princessnorah@lemmy.blahaj.zone 1 points 1 week ago (1 children)

The fact you can't respect that I ran out of spoons for arguing the point, kind of just proves my point that you don't understand the term, doesn't it?

[–] slackassassin@sh.itjust.works 2 points 1 week ago (1 children)

No. Because here you are and I also don't have forks.

[–] princessnorah@lemmy.blahaj.zone 1 points 1 week ago (1 children)

Here I am, after sleeping and recovering some spoons. That are precious, that I still don't want to waste on changing your mind, when you're clearly not willing to understand.

[–] slackassassin@sh.itjust.works 2 points 1 week ago* (last edited 1 week ago) (1 children)

It's ok, you obviously don't want to understand either, so it will cost nothing for that part.

[–] princessnorah@lemmy.blahaj.zone 0 points 1 week ago (1 children)

Do you have a chronic illness, or did you just come into this thread to argue with those that do?

[–] slackassassin@sh.itjust.works 2 points 1 week ago (1 children)

I do and so do my family members. Can you admit now that you are not willing to understand a simple point without trying to lecture ad nauseam as if the minor critique was detrimental to the entire concept?

Because here's how it actually works. I'm blocking you because you're toxic, and this is for real not worth my energy.

[–] princessnorah@lemmy.blahaj.zone 1 points 1 week ago* (last edited 1 week ago)

¯\_(ツ)_/¯

I guess me not wanting to try to argue the point was toxic. My apologies that I called into question you having a chronic illness though. I've wasted too many spoons on arguing with people who don't about this stuff in the past.