FundMECFSResearch

I tried that until some treatments my doctor prescribed permanently worsened my condition.

I don’t know why we’re in such an expirmental treatment mindset around long COVID but it certainly fucked up my health real bad.

I’m fucking tubefed now.

I mean I was 4x vaccinated before I got it. But it’s getting a little hurtful that every single post I make about long COVID has half the comments making fun of people for not getting vaccinated.

Like for fucks sake just take seriously the thing that ruined our lives and stop victim blaming at every corner you can.

Most people got long COVID before the vaccines were even a thing, it’s got the highest rate among nurses, those who were working overtime during the pandemic keeping your relatives alive.

It will. They’ll try to scientifically discredit it. RFK will call it “hysteria” or a “vaccine injury” or something.

The new leader of the NIH that Trump appointed called it “long lasting sniffles” in his book. (Long COVID has caused thousands of deaths).

Yep. But time and money massively increase the odds something is found.

Given long COVID is costing about 1 trillion per year* in lost growth, I’m surprised the capitalists aren’t taking it seriously.

*https://www.nature.com/articles/s41591-024-03173-6

As someone with Long COVID myself, I’m unsure this article is approaching it from the right angle.

Treatments don’t just come easy, they take massive monetary investment and lots of time, AIDS took 2 decades of 1 billion + per year invested.

I’m more frustrated that we’ve only had a small amount invested (yes 1.15 billion sounds like a lot, but for something that has disabled about 0.5-3% of the population so much they had to stop working, it’s actually miniscule), and so we haven’t even figured out any mechanisms. (Without knowing mechanisms, finding treatments is like throwing random shit at the wall and seeing what sticks). I’m also frustrated that people in Trump’s administration are denying long COVID is a thing or blaming it on mental health.

I wish this was the case but the average user is uninformed and can’t be bothered leaving.

Otherwise the bigger service would be lemmy, not reddit.

the market of the fediverse will balance itself out to what the users want.

Just like classical macroeconomics, you make the deadly (false) assumption that users are rational and will make the choice that’s best for them.

+1

wtf LMAO (you should probably tag NSFW)

I wanna hit them with a sparkle bomb to turn them gay :)

(Vermin Supreme reference)

Uhoh. I’ve been caught 👮🚓

I totally understand that. A lot of people here are arseholes.

I think my experience has gotten much better now that I have a long blocklist and am on an instance with downvotes disabled. But yeah it doesn’t feel super friendly all the time here.

But I feel the same way on reddit.

Really?

I mean I understand whatsapp has E2E encryption but they sell all your metadata and account data and stuff dont they. Does telegram do worse?