this post was submitted on 10 Nov 2024
602 points (98.5% liked)

Chronic Illness

242 readers
6 users here now

A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

founded 4 months ago
MODERATORS
 
you are viewing a single comment's thread
view the rest of the comments
[–] FundMECFSResearch@lemmy.blahaj.zone 5 points 1 week ago* (last edited 1 week ago) (1 children)

I used to study social data science. A couple of my projects, including masters thesis were dedicated to disability, but I didn’t specialise in disability specifically.

And then I became heavily disabled myself (by utter unluckiness).

So while I did work in a similar field this is mostly coming from personal experience.

[–] iii@mander.xyz 0 points 1 week ago (1 children)

I work a lot in data science too. But yeah, I was born with it, had to live with it, even before diagnosis.

That's my point of view: I can do it despite, given A and B and C ..

You've known a before. I can imagine the difference to be shocking. You have before and after!

[–] FundMECFSResearch@lemmy.blahaj.zone 2 points 1 week ago* (last edited 1 week ago) (1 children)

Yeah it’s pretty bad. I haven’t been able to leave my bed since I became disabled. My body is basically half dead

[–] iii@mander.xyz 1 points 1 week ago

I'm thinking paralysis? Am I wrong?

You're feeling angry too, right?

How can I help you?