Chronic Illness
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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And many doctors would be quick to prescribe you exercise, instead of actually looking at your problems.
I always felt like shit after exercise so I went to see doctors. I saw atleast ten of them over a couple years who presxribed me exercise which seemed to make me worse. After I finally found a doctor who took me seriously, tests found I had a mitochondrial (energy production) disease, and told me exercising will make it worse.
I'm glad you got the diagnoisis you needed. I went to a doctor as a teenager because I had the runs for several weeks. I was 99% sure I had gotten a parasite or other gut based sickness, I had done some traveling to a country known for unsafe water and I had also done a lot of camping that summer and didn't follow the best rules for sanitatizing water. The doctor I saw tried prescribing me an antidepressant, he thought it was depression causing my gastric distress. It took 6 months of trying this diet or cutting out that food etc until they finally decided to test my stool and found I was sick with Giradia. I was basically a skeleton by the time i finally got the treatment I needed. Since that experience, I have a fair amount of distrust for doctors at least when they are quick to throw pills at a problem.
Ah yeah they have an obsession with antidepressants. It’s also what I was prescribed alongside with exercise instead of doctors actually looking my body and figuring out whats wrong with me.
The billions of dollars pharmaceutical companies have spent on drug trials trying to show antidepressants cure everything have influenced doctors. Now don’t get me wrong SSRI’s are quite helpful for some diseases like biological depression. But some doctors give them out like candy when they really shouldn’t.