this post was submitted on 08 Sep 2024
21 points (92.0% liked)
Chronic Illness
224 readers
61 users here now
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
Rules
- Be excellent to each other
- Absolutely no ableism.
- No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
- No denying or minimising challenges faced by chronically ill people. This is a support group, not a place for people to spout their opinions on disability.
founded 4 months ago
MODERATORS
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
This is amazing, I genuinely teared up. Thank you so much, everyone.
A bit of context: I'm AuDHD and non binary and sadly I already have so much medical PTSD, both from physical doctors and from psychiatrists and mental health professionals. Some didn't listen, some attributed everything to anxiety, from some I suffered actual conversion therapy. I've been told so many times by so many doctors that my pain was not real and it was all in my head. I had to diagnose myself with AuDHD because no one ever recognized it, and I found a psychotherapist who has hEDS and suggested I might be hypermobile. I risked ending up in a mental health hospital more than once for stuff I did not have because I wasn't diagnosed with Autism and ADHD. I also have extreme social anxiety and if I do go to a doctor, I just can't remember anything about the stuff they ask and afterwards I forget what they tell me, so it ends up being completely useless.
That said, I appreciate all of the answers so much, and I think I will try and look for a doctor who isn't an idiot and at least knows what transgender means, but first I need to understand more about the syndromes and which ones I have so I don't get screwed, so if you have resources (even more technical ones) I'd love to look at them.
Thank you thank you thank you. I feel less alone.