this post was submitted on 08 Sep 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders et .

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

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Tips for chronic pain (pawb.social)
submitted 2 months ago* (last edited 2 months ago) by street_cat@pawb.social to c/chronicillness@lemmy.world
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I have recently discovered that I am hypermobile but social anxiety and the pain prevent me from going to a doctor (also I don't trust them and they scare me) Do you have any tips on living with chronic pain? Anything from over-the-counter drugs and physical aids to tips for everyday tasks I know I'll have to talk to a doctor someday but in the meantime I'd like to be able to survive lol

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[–] BrotherL0v3@lemmy.world 3 points 2 months ago (1 children)

I second this. OP, you say you're mistrustful of doctors. That impulse isn't necessarily a bad thing! Doctors are people, and sometimes people ain't shit. If you meet one that sucks & just tells you some variation of "deal with it", you are well within your rights to tell them to pound sand & find a different doctor. It can be discouraging when the first / first few you see suck ass, but the right doctor can make a huge difference.

[–] BearOfaTime@lemm.ee 3 points 2 months ago

Doctors are people

Exactly. Some suck. Some are assholes. Some are having a bad day.

As a consultant, I've been all of these to my clients at one time or another (well, I hope I don't just suck). I've misunderstood them. I've made mistakes. Doctors are no exception.

Then there's personality - you gotta figure out how to communicate with each person, not really any different than at work.