(got put in wrong place. Edited and put in correct place for proper response)
SaphiraGrace
joined 1 year ago
Hi @Focal@pawb.social. I'm a late identified and DXed #ActuallyAutistic individual here with pretty much an entire autistic/neurodivergent family that has been studying autism from a internal perspective as well as externally through the greater autistic community since my clinical DX back in 2020 - not just someone who teaches kids with "mild autism".
You are wrong in quite a few counts here - let me respectfully explain:
First off let me address the biggest one. This is a bit long but insanely important so bear with me: There is no such thing as "mild", "moderate", or "severe" autism. Language really matters here because the way we speak about autism directly affects how much assistance, acceptances, accommodations and affirmation autistic individuals get within greater society. This externally perceived version of "autism severity" is the number one reason I lived for almost three full decades before I was even seen as autistic. It is very harmful.
Autism is a SPECTRUM. Not a "gradient" as so many individuals perceive it to be. For any artists or artistically inclined readers on here - all of us should know the difference. A gradient is a blending of one or more colors in a linear fashion, your most common representation as black to white with all the varying tonalities of grey in the middle . That is NOT representative of autism whatsoever. It is not a linear condition.
Autism is clinically listed in the DSM5 as Autism **spectrum ** Condition (or "ASC", which is what I personally prefer than "disorder", or "ASD" because Autism is a neurotype, but I will get into that later) for a reason: a spectrum is a full scale color wheel with the entire visible light spectrum we see as color. It contains all primary, secondary and tertiary colors including shades and tints of each from dark to light. It is a much wider range of presentations, symptoms, experiences and expressions.
Instead of a gradient starting at mild and ending at severe - think of autism like a color wheel where each color is separated into its own gradient starting from the center of the color wheel to the outer edge. Each color represents a perceived autistic trait or symptom - not how their autism presents as a whole, but just one of those elements. Lets take being hyper-verbal or nonverbal for instance and assign that particular autism-related trait to the color red. I might be closer to the outer edge of the color wheel in this "red" section but in the blue section, let's say blue represents executive dysfunction and getting tasks done in a neurotypically expected time frame, I might be closer to the center of the color wheel (I struggle a lot with C-PTSD surrounding certain cleaning tasks and also am ADHD which also has its own executive functioning difficulties around task management and completion). THIS is a much more accurate representation of what autism really is and feels like to an #ActuallyAutistic person. You can easily google visual representations of this by searching "Autism Color Wheel" or "Autism Spectrum vs Gradient".
"Then what can I say that denotes how much someone struggles with their autism?" - One word. Masking. Masking is just what it sounds like. Some autistic individuals have lived a life where they are able to mask their presentations and symptoms at different levels - I am one such individual due to my upbringing as a female-socialized girl into woman (which I am using for simplicity despite being more non-binary myself). Masking does not imply that the impact of being autistic is lessened at all however. I still experience the full breadth and width of being autistic in a extremely neurotypicallized world. But I have learned to conceal it to the outside perspective for my own safety. Masking is not always conscious. There is a lot of fawning and people pleasing trauma responses that we simply learn over time unconsciously as a direct result of trial and error.
For instance, when I was little, one of my favorite stims (self-stimulation, or "stimming" is a self regulating response to stress of attempt to focus) was to chew handfuls of hair or the collar of my t-shirts. Obviously - my mother didn't care for that and instead of providing me with an acceptable alternative, she told me to stop it all together. The need to stim didn't leave me - it just went internally where it caused a bunch of psychological stress and harm that would go into overload if I didn't find another way to externalize the need to regulate. I only masked it and made it externally invisible - but it still affected me internally. It is for this reason why although so many autistic individuals know how to mask to the point that they look neurotypical or "less autistic".
I didn't stop being autistic when I internalized my external needs (which can be so inherently psychologically dangerous and causes a lot of depression and self-harmful thoughts to even the point of wishing to be un-alived) I masked my autistic traits so I wouldn't be bullied or reprimanded or singled out anymore. That didn't take my autistic needs or traits away - it just hid them from external view. I am just as autistic as I was when I was little, I just have learned strategies to cope and get by with my difficulties in public - but behind closed doors I still exhibit "little girl" stims and challenges. I still have meltdowns. I still have times of situational mutism and go non-verbal. I still flail and flap my arms when I am emotionally dysregulated.
Ok, with that out of the way: respectfully yet again (my aim is to educate; not hound on you despite the length of this post - that's just because this stuff isn't super simple to cover and requires a bit of clarification before going on to my next point:
Please, don't ever assign "real reasons" without first speaking to your autistic student. As you might have surmised above (if you even read this far. I promise I will do a TLDR at the end); from an external perspective: you will NEVER fully know the reason for why an autistic individual does something unless you ASK THEM. Unfortunately, depending on the level of self-awareness and internal discovery work the autistic individual in question has done - they might not rightfully know. Or - they might not yet have the language to verbally express what they know, or might have not yet heard their own lived experiences echoed in someone else's account of a similar situation. I know I didn't. I had no idea about half of the autistic spectrum-y things I do or need until I heard it voiced from another autistic. I am still learning all the ways my neurological wiring affects me (oh yea: "Neurotype" is how someone is neurologically wired - think different types of operating systems like MAC vs PC or Apple vs Windows. "Neurotypical" is like one, "Neurodivergent" is like the other; they still function - just very differently from one another. But if you try to open a program built for one in the other - it just doesn't work).
Remember assuming reasons or intent for anyone only makes an ASS out of U and ME. Instead - just like you should with any human that deserves respect (which should be all of them if you are a decent person) you should ask your students why they are doing whatever is upsetting you or seems to be "non compliant". They might not even know - but it does not give you any right to assign intent or reason for what they are doing. That is just poor educatorship . Instead, do some more research and make an inferred hypothesis and then CHECK with your students by **asking ** them if u are getting close to what might be going on.
Personally; my hypothesis to the above scenario in your comment is that the verbal excuse they have given you is a default excuse they have learned to give out of ignorance to the real reason they either might not know or might not know how to verbalize what is actually going on in a way that would be palatable to your expectations. They probably also know that you are more likely to not listen to their actual explanation and deem you too reactive to even grace you with a more eloquently verbalized actual reason - such as executive dysfunction or trauma responses which are both reasonable explanations for neurodivergent individuals and deserve assessment and accommodation for the task if needed. If a student of yours is having executive functioning difficulties with an assigned task - it is up to you as their educator to figure out why they are by speaking to them and come up with an accommodation or provide them with either mental or physical tools to better do the task requested.
That is not a failure on them; that is a failure fully on you - as being an educator is much more than just telling people to do things and expecting them to do them without error or issue. Being an educator is about being flexible to your students needs -regardless of neurotype or invisible disability (or physical disability for that matter). If I were in your shoes; I would do my damnedest to learn how to better accommodate and assist differently abled and differently neurologically wired individuals and stop assigning intent and reason to why you are having challenges teaching these individuals.
"Excuse vs Explanation" is a huge topic of mine that I love to educate on - but frankly, without the above groundwork to precede it there is no way to explain and educate you. If you have gotten this far I will grant you this: Excuses are often perceived as "lazy" reasons why someone wont do something. It assumes that there is no logical reason - externally or internally - for someone to not comply with a task. It assumes incompetence, it assumes intent on not doing the task out of sheer insolence and insubordination. Very rarely is this actually the case.
If you have zero idea the struggles your students face as neurodivergent individuals - not just in your classroom, but in the world and society
CONTINUED From SaphiraGrace' response to @Focal@pawb.social below.....world and society as a whole - you do not possess the required data or facts or lived experience to assign intent or reason to why a student doesn't comply with a task or demand. You just don't. And its not yours to assume.
Please, I know this is long. I am quite aware. (Yes, I will have a TLDR for reference here in a second) but it is fully necessary in response to such vapid ignorance and harmful assumption when it is so clear that you know very little about autism from a lived experience perspective. I get it. I'm not mad at you - just disappointed at how rampant such a take is in our society. So rampant that I have dedicated the rest of my life to educating those like yourself about what being autistic and neurodivergent really is like - and I will likely be doing such until I die.
Please find autistic voices to listen to. Autistic experiences to widen your understandably neurotypically-limited perspective. We need better understanding. We need better levels of empathy and care than we are currently receiving. We need better inclusion in society - not just surface-level, but inclusion that gives us a sense of truly belonging. We need those who don't process and experience life the way we do to still give us a chance at living an authentic life without such a steep risk of burnout and stress that too often culminates in losing our lives to it.
If you would like some resources to learn more, please, DM me (this goes for anyone who has read through this mammoth of a post thus far and are also intrigued to know more). I have bookoos of them that I have collected and acquired through about half a decade or more of research and self-introspection. I am proverbial fount of information and I do not wish to keep all my knowledge and insight to myself - for having an outlet to share it is one of my few ways to safeguard myself from my own burnout and potential demise.
OK HERE WE GO! The TLDR:
From the top:
Spectrum vs. Gradient:
Masking:
Utilize a Better Approach to Educating:
Personal Experience:
Call to Action: