this post was submitted on 30 May 2024
249 points (97.0% liked)
Asklemmy
43898 readers
1344 users here now
A loosely moderated place to ask open-ended questions
If your post meets the following criteria, it's welcome here!
- Open-ended question
- Not offensive: at this point, we do not have the bandwidth to moderate overtly political discussions. Assume best intent and be excellent to each other.
- Not regarding using or support for Lemmy: context, see the list of support communities and tools for finding communities below
- Not ad nauseam inducing: please make sure it is a question that would be new to most members
- An actual topic of discussion
Looking for support?
Looking for a community?
- Lemmyverse: community search
- sub.rehab: maps old subreddits to fediverse options, marks official as such
- !lemmy411@lemmy.ca: a community for finding communities
~Icon~ ~by~ ~@Double_A@discuss.tchncs.de~
founded 5 years ago
MODERATORS
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
Mark Rober was a big disappointment too. he made a pretty weird video about autism, using the fact that his son is autistic as like qualification for him to talk about it. autistic folks tried to talk to him about the problematic nature of the video in the comments, and he just blocked them. plus, he partnered with NXT for Autism, which does work with Autism Speaks, which is genuinely a hate group that's trying to exterminate autism, and, last I checked, had no autistic people on the board.
As a parent of a child with Level 1 autism I would never dare speak as an authority on the subject. There's just so much nuance to it. I could give people a surface level introduction but that's it. Being a parent does not make people by default into expert psychotherapists.
That being said, don't discount your expertise in your lived experience. The importance of theoretical and experiential expertise is equal in my eyes.
Maybe not directly correlated, but I would hire someone with 10 years experience over someone who studied the subject for 10 years.
Thanks. Well, we're in our first year since the diagnosis. There's still a lot I don't understand.
The more you understand the better you can help. You've made the first and most important step. I'm extremely passionate about this and you will find many around you are also passionate. I'm a grown ass dude and 46 and could cry.
Talk to their teachers as they get older. The best thing you can ever do is diagnose. There are so many kids in the school system parents bury their heads and it hurts everyone.
If you ever want to talk I'm almost a decade into my autism journey. Started at 3 and my son is now 11.
Thanks for the kind words stranger! We are fortunate that we moved to Italy (from US) and they have a -relatively- good integration with the schools. He will need an aid next year in the class for some time so the teachers 'get it' (sort of).
Yes, I will save your contact info. I may actually reach out. There are a lot of things I'm still struggling with (he has a loud projection when he expresses himself and it's almost all the time). I think we sort of adjusted to it over time but it gets heavy at times. I'll stop here.
Thanks again!
Both my boys stim verbally with my youngest being "worse" at is. The balance is teaching them awareness and also time and place.
I disagree. It’s not as simple as that.
I wasn’t diagnosed until age 30, and I am thankful I went through my childhood without the label.
If you were not diagnosed until 30 and you're here on Lemmy you're validating my challenge with all the people like you being the exception to the rule. The fact that you are here and can communicate puts you ahead of what I would define as the silent majority of those with autism.
You’ve been gathering experience from before the diagnosis. You don’t have a year of experience you have the age of your child of experience.
There are different kinds of experience. For instance there’s the experience of having a child with autism. There’s also the experience of being autistic.