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Imagine that… (lemmy.world)

Most patients predicted that their worst symptoms when exposed to gluten would be classic lower digestive problems like diarrhea, bloating and cramps. However, none of these occurred during the acute immune responses observed by Anderson’s team. Instead, patients experienced nausea and vomiting. Anderson describes them as, “acute food poisoning symptoms that are early in onset,” and relatively severe.

“For all the years that we’ve known about celiac disease, persons have told us that they had these acute reactions, but many experts in the field dismissed them as being just in the person’s mind,” says Anderson. “Here we are now, a hundred years after celiac disease was discovered, suddenly discovering, yes, the patients were right.”

Nausea and Vomiting Mark Gluten Exposure in Celiac Disease 🙄

(Emphasis mine)

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I was diagnosed with Celiac disease about 15 years ago - had the endoscopy and then a couple of years later, had the blood marker test to verify. My reactions to eating gluten have not been consistent, and I don't know what to make of it. More often than not, I get the diarrhea and bloating. Sometimes I get the nausea, but only once have I thrown up from eating gluten. Sometimes I get nothing at all (not as common, but it happens).

Then there was a period of about 1.5 years where I'd get random swelling in my face (usually in my eyes and lips), and hives. My sinus cavities would often get very swollen and irritated, too. But that suddenly stopped, and is no longer a symptom.

Been to a few different gastroenterologists over the years, and went to an allergy doctor when I was having all the facial swellings. Nobody was able to explain why I have such inconsistent reactions, but they are confident I have Celiac disease.

this post was submitted on 08 May 2024
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