this post was submitted on 17 Apr 2024
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My, at the time unknown degenerative collagen coding defect was also treated as "lose weight fatty", I lost weight, without even trying, because it turns out collagen is an important tissue structure in a functional digestive system. I lost weight too fast, I lost a lot of lean muscle as well as fat.
Turns out muscle is important for holding your joints together if you don't have quality collagen to do that job.
Suddenly the real cause of my symptoms was evident, but I never got an apology for years of misdiagnosis and being blamed for my own illness.
Fun fact, one of the many things I was told to do as part of proper treatment was gain weight! (albeit, muscle weight)
Now I'm starting to get cardiopulmonary symptoms, which makes sense, your heart and lungs also have collagen. I don't have a specialist at the moment, and recently had to find a new GP because my old GP said I need to "exercise more" to prevent my new symptoms... Even though my physical therapist says my level of activity is more than enough and if my lungs aren't physically structured properly, no amount of cardio workouts will help me breathe properly.