this post was submitted on 28 Feb 2024
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There is a scene from a series called Joan of Arcadia (a truly undervalued series from the early 2000s) where Joan asks teen boy God to show her a miracle, and he points to a tree. She says "that's just a tree" and he replies "Lets see you make one"

Do you believe in magic?

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[–] NielsBohron@lemmy.world 13 points 8 months ago (1 children)

Henrietta Lacks didn't "help science." Scientists stole her genetic and biological material without her consent and built entire careers on it because she was a poor Black woman who had no one to advocate for her or advise her.

Using Henrietta Lacks as an example of "cancer can be a miracle" without acknowledging this fact is truly tone-deaf, IMHO. Sure, you can argue that this "helped science," but by that logic, so did the Tuskegee Syphilis Study.

[–] KevonLooney@lemm.ee 7 points 8 months ago (1 children)

Uh she most definitely did help. Yes, it was without her consent but it most definitely saved many lives. More than most doctors. And her cells measurably improved the lives of billions more. Saying that doesn't diminish what happened to her.

The cells they took from Henrietta did not harm her and would have been destroyed otherwise. The main problem was a lack of consent. You can't sell parts of your body for money anyway, so compensation would most likely have been zero.

The Syphilis study, by contrast, did nothing, produced no results, and harmed its patients:

despite clinicians' attempts to justify the study as necessary for science, the study itself was not conducted in a scientifically viable way.

Austin V. Deibert of the PHS recognized that since the study's main goal had been compromised in this way, the results would be meaningless and impossible to manipulate statistically.

https://en.wikipedia.org/wiki/Tuskegee_Syphilis_Study

[–] NielsBohron@lemmy.world -3 points 8 months ago (1 children)

The main problem was a lack of consent

You say that like the lack of consent was some trifling detail

she most definitely did help. Yes, it was without her consent but it most definitely saved many lives

She didn't have a say in it, so how did she personally help? I'm not trying to diminish the good that the research has done, but saying Henrietta Lacks helped science implies she made a conscious decision.

If I was sleeping and my wife took a glass of water from my bedside table and extinguished a fire, did I help put out the fire?

[–] KevonLooney@lemm.ee 5 points 8 months ago

You are diminishing her help, whether you want to or not. People do things all the time without making a conscious decision, especially when it comes to bodily functions. Are you consciously breathing right now? Are you consciously converting food into energy and waste?

How would someone "consciously" donate valuable cells anyway? How would you know that your cells were some amazing breakthrough? All tissue donation is done unconsciously, usually while the patient is unconscious (or dead).

The consent issue is "trifling" compared to the amount of good it did. Her cells have literally helped billions of people and she wasn't hurt by the donation at all. It's an important ethical issue for armchair philosophers who can ignore the deaths that would have happened without this tool.

What's "trifling" is your comparison with the Tuskegee experiment, which was just cruelty in action that helped nobody.