this post was submitted on 16 Nov 2023
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Hey... just throwing it out there. Is it possible to miss being diagnosed with something like Crohns even after seeing specialists for many years and finally getting thrown in the too hard basket?
Did anyone else in this situation ever get an answer?
It's always easy to miss things! I have a heart defect that was missed for years because it was constantly fobbed off as anxiety. It wasn't until I started seeing a nurse for something unrelated did someone genuinely start to question what was going on.
Turns out my heart isn't overzealous because I'm anxious, it's because it's making up for that fact it's got some issues it's trying to constantly correct on its own.
Haha same sort of deal here hi five
It has all the hallmarks of being a disease that is easy for a doctor to fuck up:
That's... hopeful? Because it means there might still be something treatable on the table.
I would like to think 'not anymore' but anything is possible. And something like Crohn's can affect any part of your digestive tract and be mild to severe. So .. yeah maybe? Depends what's been tested/considered. I dont know how Crohn's specifically is diagnosed (but have history and relationships with people with similar hard to ID issues). My advice is gather your evidence and find a doctor who will listen and problem solve with you. It's hard but they do exist
I've been through so many tests and tried so many things but the last tests were 6 years ago (an important one unsuccessful) and the situation has deteriorated since.
My current specialists aren't listening because they have it pegged as 'psychosomatic' and are saying they don't see the need for more tests. So... guess I have to either push harder or go elsewhere.
I'm so sorry. I get it. I don't have anything to advise except trust your gut (haha) and keep pushing, or just treat yourself in line with what your body tells you is wrong. If it works you have your answer.
I think I'll be pushing for another round of tests, thanks 👍
I got diagnosed with something with variable symptoms too, and most of the common ones overlap with yours, so yeah it could be other stuff