this post was submitted on 24 Oct 2024
62 points (100.0% liked)
ADHD
9655 readers
39 users here now
A casual community for people with ADHD
Values:
Acceptance, Openness, Understanding, Equality, Reciprocity.
Rules:
- No abusive, derogatory, or offensive post/comments.
- No porn, gore, spam, or advertisements allowed.
- Do not request for donations.
- Do not link to other social media or paywalled content.
- Do not gatekeep or diagnose.
- Mark NSFW content accordingly.
- No racism, homophobia, sexism, ableism, or ageism.
- Respectful venting, including dealing with oppressive neurotypical culture, is okay.
- Discussing other neurological problems like autism, anxiety, ptsd, and brain injury are allowed.
- Discussions regarding medication are allowed as long as you are describing your own situation and not telling others what to do (only qualified medical practitioners can prescribe medication).
Encouraged:
- Funny memes.
- Welcoming and accepting attitudes.
- Questions on confusing situations.
- Seeking and sharing support.
- Engagement in our values.
Relevant Lemmy communities:
lemmy.world/c/adhd will happily promote other ND communities as long as said communities demonstrate that they share our values.
founded 1 year ago
MODERATORS
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
Oh 100%, executive dysfunction really is an absolute bitch, and getting through that wall can be the hardest fucking part!
Not to mention just how hard it can be to find medical staff that isn't burnt out to the point of not giving a crap.. :/
I know it seems like just adding an extra step, but have you considered checking if there are any (volunteer) patient advocacy services available near you? I have some other difficulties too, so more help might be available to me, and also I don't know where you are, in US it might be too big an ask, but having an advocate has been a game changer for me - they help make calls for you to arrange appointments and follow ups and stuff, help liaise with staff if you need them to, basically they jump a lot of the hurdles for you to help you get to where you need to be.
If something like that isn't available, is there anyone in your life that you'd trust to advocate for you? In any case, you'd need to give permission to your provider to speak to them on your behalf, which again seems like just an extra step, but I really think that sharing some of the burden of acting with someone else can be a great help (though it might not work for you, and that's ok too).
I have a friend that helps me with some basic stuff, but in recent years they've gotten busier and more stressed, and I'm always going to have them put themselves first. They still help a lot, but it has gotten harder when they can't help and I don't get my own shit together. I'm embarrassed to admit how long it takes me to find a new doctor or therapist. I've never looked into an advocate, though. I don't think I'd qualify, but I'll definitely take a look, thanks!
Yeah, it can be hard because everyone has shit going on, it's why having someone in your life whose specific job is to help you with stuff like this is so helpful, because it feels less like pilling on to someone else. You can of course hire a PA, but that becomes expensive, but it's definitely worth looking around, try ADHD/neurodiversity specific charities or organisations, but depending on your circumstances you might qualify for other types of places too.
Also, don't be embarrassed, I've taken years to sort shit out, life is already so overwhelming, having additional barriers to deal with these aspects of life can make it almost impossible at times. You're doing your best.