Excellent Reads

1490 readers

3 users here now

Are you tired of clickbait and the current state of journalism? This community is meant to remind you that excellent journalism still happens. While not sticking to a specific topic, the focus will be on high-quality articles and discussion around their topics.

Politics is allowed, but should not be the main focus of the community.

Submissions should be articles of medium length or longer. As in, it should take you 5 minutes or more to read it. Article series’ would also qualify.

Please either submit an archive link, or include it in your summary.

Rules:

Common Sense. Civility, etc.
Server rules.

founded 1 year ago

MODERATORS

Iliveonsaturdays@sh.itjust.works

awesome_lowlander@lemmy.dbzer0.com

AwesomeLowlander@sh.itjust.works

Killed by ME, the terrible illness that divides doctors (archive.ph)

submitted 2 months ago by mecfs@lemmy.world to c/longreads@sh.itjust.works

13 comments fedilink hide all child comments

you are viewing a single comment's thread
view the rest of the comments

[–] cleanandsunny@literature.cafe 13 points 2 months ago

What a tragedy. I hope they push out national changes so her death wasn’t a complete waste. Refusing a feeding tube is bananas.

Here in the US, the discourse around ME/CFS is changing significantly now that doctors are constantly encountering long COVID and sequelae of other viral illnesses. (Another great example of this phenomenon is the sequelae like eye and joint problems among Ebola survivors, which didn’t exist as a patient cohort until 2015.) It’s unfortunate that so many people have long COVID, but the volume of patients is definitely shaking up how doctors are thinking about “mystery illnesses.” When millions of people are following a pattern, and the sample sizes are big enough to prove things, things change. I hope that MS/CFS sufferers benefit from all of this new research and training.