this post was submitted on 07 May 2024
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Why are you this way?
Just why?
Hi there. Had kidney failure for about 8 years.
There was this one medication I badly needed to control secondary hyperparathyroidism. Literally used all avenues, and couldn't get it approved or covered, other than by paying around 800$ for a single dose. I even had private insurance still at the time btw. The alternative was a surgery to remove a parathyroid gland which would then lead me to having other severe health complications if I got a kidney transplant. You know, due to now missing an organ.
Second treatment in Finland when I was just VISITING, not even a resident yet - "oh, you're PTH levels are extremely high. We're going to give you "medicine I've been trying to get for months".
Just like that. No struggle even. Cost? 25$, and that includes the superior diafiltration treatment (USA only has dialysis, despite it giving poorer quality of life and lowering life expectancy, thanks to lobbying from DaVita.
Anyway, fuck you ๐
I'm really sorry you had to go through all of that, but it's great that you finally managed to get the treatment you needed.