this post was submitted on 14 Feb 2024
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I have a 10 yo daughter with PDA autism (and ADHD) who decided to refuse her medication in early January. We have noticed a big difference from when she took them so we really want her to get back on them, but nothing we have tried works. Anyone with some experience they want to share? We are grasping for straws at this point. Help

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[–] savvywolf@pawb.social 11 points 9 months ago* (last edited 9 months ago) (14 children)

I don't have kids nor have I had to take or give medication myself, so take this with a grain of salt.

The first question I'd try to figure out is why she isn't taking them. Maybe it's a texture thing (my parents tried to give me omega 3 capsules, they were just generally unpleasant to take, blegh), or perhaps she doesn't understand what they do or why they are important (autistic people like to have concrete reasons for things rather than "because I said so" or "it'll make you feel better").

[–] spainball@lemmy.world 8 points 9 months ago (13 children)

We have gone through a slew of different meds and delivery systems that she outright rejected because of nasty taste or hard to ingest. But these ones were never an issue, especially since we introduced pill-covers with good taste. The only reason we are getting our of her is that if she takes them, we (the parents) win and ergo, she looses. We have tried with every way we can think of to explain what they do and why they are good, and why nobody looses and everyone wins. And sometimes it feels like we get through, but when its time to actually take them its like there is a muscular block that just wont go through with it and we end up in a several hours long, one sided, war

[–] BillDaCatt@kbin.social 4 points 9 months ago (1 children)

How long has she been taking these meds? Is it possible that she does not feel like herself when she takes the meds? I remember when I was taking Adderall for ADHD the symptoms improved, but I didn't feel like the same person anymore. I wasn't me. I eventually stopped taking it for other health reasons but when I did I felt like I was me again.

Perhaps that is what is going on for her? Maybe this medication works great for improving interactions with her but it alienates her from herself?

[–] spainball@lemmy.world 2 points 9 months ago (1 children)

I am not surprised at all if this is a major part of it, it's not something she has expressed though (which is completely understandable for a 10 yo I think) so we are only guessing. She took these meds for a couple of months before she stopped, several others before that (that didnt work for different other reasons).

[–] BillDaCatt@kbin.social 2 points 9 months ago* (last edited 9 months ago)

I feel for you. I know that dealing with the average 10 year old can be difficult.

I keep think of Temple Grandin. The reason is because I wonder if there are any support groups that have some people with high functioning autism in them who might be able to help you to relate or help your daughter to communicate her feelings to you. I don't know just a thought.

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