this post was submitted on 27 Oct 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

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I feel like if he gets his way I’ll be prescribed sunshine, exercise, raw milk, and whatever drug a pharmaceutical bribed him to sell, instead of the immunomodulators I really need.

He’s like a mix of your uncle who thinks your chronic illness would go away if you “go outside and get some sunshine, stop being so negative, and eat more xyz” and your aunt who believes “acupuncture and supplements will cure you and all other medicines are a conspiracy”.

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[–] plz1@lemmy.world 129 points 2 weeks ago (5 children)

TIL the FDA aggressively suppresses the sun and exercise, somehow.

[–] apfelwoiSchoppen@lemmy.world 38 points 2 weeks ago* (last edited 2 weeks ago)

You can burn a lot of calories and get a lot of vitamin D from cutting the head off of a beached whale. The FDA is terrified of how this is not patentable.

[–] AllNewTypeFace@leminal.space 34 points 2 weeks ago (1 children)

Exercise suppression is delegated to car-brained urban planners who design single-zoned suburbs without sidewalks where the only way to get exercise is to explicitly make it a consumer activity by driving to a gym to uselessly walk on a treadmill

[–] grue@lemmy.world 3 points 2 weeks ago* (last edited 2 weeks ago)

It's not just urban planners; it's also the Federal Housing Administration, which created lending guidelines back in the day that redlined all the dense traditional development.

[–] frezik@midwest.social 9 points 2 weeks ago

Hell, when it really comes down to it, they don't surpress things like psychedelics or stem cells, either. In so far as the FDA is involved at all, it's in following mandates from congress. Those things are suppressed as a matter of policy that's much broader than the FDA.

[–] x00z@lemmy.world -5 points 2 weeks ago

It's more about not promoting their positives.